Bowel cancer any tips?

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shabbado
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Re: Bowel cancer any tips?

Post by shabbado »

Vespa wrote: Mon Sep 07, 2020 3:52 pm
shabbado wrote: Mon Sep 07, 2020 3:50 pm 18 rounds of chemo thus far? That takes some doing.

Stay strong dude
To be fair the first 13 were fucking awful, the recent ones not so bad. My tumour markers are down to 215 from 220.
After 18 sessions i'd hope the markers would be going down.

As before stay strong :smt058
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Vespa
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Re: Bowel cancer any tips?

Post by Vespa »

shabbado wrote: Mon Sep 07, 2020 3:56 pm
Vespa wrote: Mon Sep 07, 2020 3:52 pm
shabbado wrote: Mon Sep 07, 2020 3:50 pm 18 rounds of chemo thus far? That takes some doing.

Stay strong dude
To be fair the first 13 were fucking awful, the recent ones not so bad. My tumour markers are down to 215 from 220.
After 18 sessions i'd hope the markers would be going down.

As before stay strong :smt058
They didn't for the first 13 rounds, the new regime has brought them down. Not by much, the scan is the acid test.

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shabbado
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Re: Bowel cancer any tips?

Post by shabbado »

Vespa wrote: Mon Sep 07, 2020 3:57 pm
shabbado wrote: Mon Sep 07, 2020 3:56 pm
Vespa wrote: Mon Sep 07, 2020 3:52 pm
shabbado wrote: Mon Sep 07, 2020 3:50 pm 18 rounds of chemo thus far? That takes some doing.

Stay strong dude
To be fair the first 13 were fucking awful, the recent ones not so bad. My tumour markers are down to 215 from 220.
After 18 sessions i'd hope the markers would be going down.

As before stay strong :smt058
They didn't for the first 13 rounds, the new regime has brought them down. Not by much, the scan is the acid test.
Understandable that you / the doctors would want to reevaluate your treatment if there had been no movement after 13 session.
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Vespa
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Re: Bowel cancer any tips?

Post by Vespa »

shabbado wrote: Mon Sep 07, 2020 4:09 pm
Vespa wrote: Mon Sep 07, 2020 3:57 pm
shabbado wrote: Mon Sep 07, 2020 3:56 pm
Vespa wrote: Mon Sep 07, 2020 3:52 pm
shabbado wrote: Mon Sep 07, 2020 3:50 pm 18 rounds of chemo thus far? That takes some doing.

Stay strong dude
To be fair the first 13 were fucking awful, the recent ones not so bad. My tumour markers are down to 215 from 220.
After 18 sessions i'd hope the markers would be going down.

As before stay strong :smt058
They didn't for the first 13 rounds, the new regime has brought them down. Not by much, the scan is the acid test.
Understandable that you / the doctors would want to reevaluate your treatment if there had been no movement after 13 session.
It is normal practice to scan in the middle and end of the chemo regime (for me that was 13 cycles for the first regime and 12 for this one) because of COVID they skipped the mid regime scan.

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shabbado
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Re: Bowel cancer any tips?

Post by shabbado »

Vespa wrote: Mon Sep 07, 2020 4:14 pm
shabbado wrote: Mon Sep 07, 2020 4:09 pm
Vespa wrote: Mon Sep 07, 2020 3:57 pm
shabbado wrote: Mon Sep 07, 2020 3:56 pm
Vespa wrote: Mon Sep 07, 2020 3:52 pm
shabbado wrote: Mon Sep 07, 2020 3:50 pm 18 rounds of chemo thus far? That takes some doing.

Stay strong dude
To be fair the first 13 were fucking awful, the recent ones not so bad. My tumour markers are down to 215 from 220.
After 18 sessions i'd hope the markers would be going down.

As before stay strong :smt058
They didn't for the first 13 rounds, the new regime has brought them down. Not by much, the scan is the acid test.
Understandable that you / the doctors would want to reevaluate your treatment if there had been no movement after 13 session.
It is normal practice to scan in the middle and end of the chemo regime (for me that was 13 cycles for the first regime and 12 for this one) because of COVID they skipped the mid regime scan.
One of the many knock on effects of the pandemic.

What was the specific reason they gave for skipping said scan? Was travelling to the hospital considered too great a risk for you?
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Vespa
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Re: Bowel cancer any tips?

Post by Vespa »

shabbado wrote: Mon Sep 07, 2020 4:30 pm
What was the specific reason they gave for skipping said scan? Was travelling to the hospital considered too great a risk for you?
The blood tests for my immune system were below 1.0 which they really don't like.

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shabbado
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Re: Bowel cancer any tips?

Post by shabbado »

Vespa wrote: Mon Sep 07, 2020 4:43 pm
shabbado wrote: Mon Sep 07, 2020 4:30 pm
What was the specific reason they gave for skipping said scan? Was travelling to the hospital considered too great a risk for you?
The blood tests for my immune system were below 1.0 which they really don't like.
Understandable but no doubt frustrating as hell for you to have to go through the full 13 sessions with minimal effect
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Vespa
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Re: Bowel cancer any tips?

Post by Vespa »

shabbado wrote: Mon Sep 07, 2020 4:45 pm Understandable but no doubt frustrating as hell for you to have to go through the full 13 sessions with minimal effect
I've never bought into the 'you fight cancer' mindset, I'm a passenger on my treatment train. The doctors tell me to do it and I do, whenever I made assumptions I've always been wrong. Now I just turn up.

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shabbado
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Re: Bowel cancer any tips?

Post by shabbado »

Vespa wrote: Mon Sep 07, 2020 4:55 pm
shabbado wrote: Mon Sep 07, 2020 4:45 pm Understandable but no doubt frustrating as hell for you to have to go through the full 13 sessions with minimal effect
I've never bought into the 'you fight cancer' mindset, I'm a passenger on my treatment train. The doctors tell me to do it and I do, whenever I made assumptions I've always been wrong. Now I just turn up.
I agree. I dislike the use of the word 'fight' with regards to cancer. It implies choice.
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Sadact7
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Re: Bowel cancer any tips?

Post by Sadact7 »

Vespa wrote: Mon Sep 07, 2020 4:55 pm
shabbado wrote: Mon Sep 07, 2020 4:45 pm Understandable but no doubt frustrating as hell for you to have to go through the full 13 sessions with minimal effect
I've never bought into the 'you fight cancer' mindset, I'm a passenger on my treatment train. The doctors tell me to do it and I do, whenever I made assumptions I've always been wrong. Now I just turn up.
I think the “fighting” rhetoric is just a way to help sufferers from feeling completely helpless. Obviously I’m not speaking from first hand experience but I guess it’s whatever helps you to cope mentally.

Best of luck as ever pal.
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davidarthur
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Re: Bowel cancer any tips?

Post by davidarthur »

Good luck Vespa

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Vespa
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Re: Bowel cancer any tips?

Post by Vespa »

davidarthur wrote: Mon Sep 07, 2020 9:32 pm Good luck Vespa
Thank you.

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Vespa
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Re: Bowel cancer any tips?

Post by Vespa »

Sadact7 wrote: Mon Sep 07, 2020 5:59 pm
Vespa wrote: Mon Sep 07, 2020 4:55 pm
shabbado wrote: Mon Sep 07, 2020 4:45 pm Understandable but no doubt frustrating as hell for you to have to go through the full 13 sessions with minimal effect
I've never bought into the 'you fight cancer' mindset, I'm a passenger on my treatment train. The doctors tell me to do it and I do, whenever I made assumptions I've always been wrong. Now I just turn up.
I think the “fighting” rhetoric is just a way to help sufferers from feeling completely helpless. Obviously I’m not speaking from first hand experience but I guess it’s whatever helps you to cope mentally.

Best of luck as ever pal.
I don't mind when people say it, I feel reasonably well so it doesn't feel like fight. When I meet people who've had half a lung removed they've been in an actual battle.

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Vespa
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Re: Bowel cancer any tips?

Post by Vespa »

Lost the feeling in my arms today so had to visit the hospital, this glove dispenser reminded me of me on a good night out.

Image

I wasn't having a heart attack, which is what the nurses were worried about - it is just a known side effect which wears off in a few days.

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paolo
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Re: Bowel cancer any tips?

Post by paolo »

hope the feeling has come back

how is your appetite since the treatment started?
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