Bowel cancer any tips?

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Vespa
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Re: Bowel cancer any tips?

Post by Vespa »

antdad wrote: Wed Aug 02, 2023 10:59 am @Vespa. So how do you physically pay for meds coming out of I assume is a NHS hospital pharmacy?
They send me a bill.

To put this in context, a few months ago they admitted me. They couldn't find a bed in the private ward so put me on a NHS ward - didn't bother me. They then charged me for the NHS bed.

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Vespa
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Re: Bowel cancer any tips?

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Just about to finish my first week of pill-based chemo, I'm down to the last three treatments - something they call the 'survival line' - it's been pretty good. Now I've been off the other drug for six weeks I've stopped bleeding from my nails and stuff and feel pretty good.

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lambrini
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Re: Bowel cancer any tips?

Post by lambrini »

Vespa wrote: Mon Aug 21, 2023 10:58 am Just about to finish my first week of pill-based chemo, I'm down to the last three treatments - something they call the 'survival line' - it's been pretty good. Now I've been off the other drug for six weeks I've stopped bleeding from my nails and stuff and feel pretty good.
Good news, Vespa 🐝
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Vespa
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Re: Bowel cancer any tips?

Post by Vespa »

lambrini wrote: Mon Aug 21, 2023 4:10 pm
Vespa wrote: Mon Aug 21, 2023 10:58 am Just about to finish my first week of pill-based chemo, I'm down to the last three treatments - something they call the 'survival line' - it's been pretty good. Now I've been off the other drug for six weeks I've stopped bleeding from my nails and stuff and feel pretty good.
Good news, Vespa 🐝
So far, I get some blood tests next week to see if it's working.

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kevin04
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Re: Bowel cancer any tips?

Post by kevin04 »

Vespa wrote: Tue Aug 22, 2023 6:33 pm
lambrini wrote: Mon Aug 21, 2023 4:10 pm
Vespa wrote: Mon Aug 21, 2023 10:58 am Just about to finish my first week of pill-based chemo, I'm down to the last three treatments - something they call the 'survival line' - it's been pretty good. Now I've been off the other drug for six weeks I've stopped bleeding from my nails and stuff and feel pretty good.
Good news, Vespa 🐝
So far, I get some blood tests next week to see if it's working.
:heart: :heart: :heart:
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Vespa
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Re: Bowel cancer any tips?

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Got a call from my consultant last night. They are going to try to put me on a clinical trial. He's written to the pharma company to get permission. Means I have to move from private back to NHS because all trials are done on the NHS so I need to phone AXA today. Be interesting to see how it goes - if anyhwere.

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subsub
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Re: Bowel cancer any tips?

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Vespa wrote: Fri Sep 15, 2023 9:02 am Got a call from my consultant last night. They are going to try to put me on a clinical trial. He's written to the pharma company to get permission. Means I have to move from private back to NHS because all trials are done on the NHS so I need to phone AXA today. Be interesting to see how it goes - if anyhwere.
Good luck, Vespa :)
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Vespa
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Re: Bowel cancer any tips?

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subsub wrote: Fri Sep 15, 2023 9:05 am
Vespa wrote: Fri Sep 15, 2023 9:02 am Got a call from my consultant last night. They are going to try to put me on a clinical trial. He's written to the pharma company to get permission. Means I have to move from private back to NHS because all trials are done on the NHS so I need to phone AXA today. Be interesting to see how it goes - if anyhwere.
Good luck, Vespa :)
Thanks, man. When I first started chemo, medical trials seemed like a magic bullet. Now I'm on my sixth form of chemo I've learned that chemo is pretty random per. individual and medical trials in very rare cases can seem like miracles but in the majority of cases just extend life. Statistically, I'm in the last year of my expected life so if it does extend life that would be welcome.

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antdad
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Re: Bowel cancer any tips?

Post by antdad »

I was at my elderly demented Ma's the other day with a tablet open on or and around one of your posts. She was very taken with your moniker and asked what it was, I said it was gay man who's not very well that I occasionally engaged with.

When's the wedding she asked. :shock: :lol:

Thoughts and prayers.

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Vespa
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Re: Bowel cancer any tips?

Post by Vespa »

antdad wrote: Fri Sep 15, 2023 10:11 am I was at my elderly demented Ma's the other day with a tablet open on or and around one of your posts. She was very taken with your moniker and asked what it was, I said it was gay man who's not very well that I occasionally engaged with.

When's the wedding she asked. :shock: :lol:

Thoughts and prayers.
Hope your Ma is doing well.

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Zambo
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Re: Bowel cancer any tips?

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Vespa wrote: Fri Sep 15, 2023 9:02 am Got a call from my consultant last night. They are going to try to put me on a clinical trial. He's written to the pharma company to get permission. Means I have to move from private back to NHS because all trials are done on the NHS so I need to phone AXA today. Be interesting to see how it goes - if anyhwere.
I've got everything crossed for you Vespa. You have been a beacon of light and an inspiration the way you have handled your health issues, and trust that this new direction will be a beacon of hope for you.
When your heart is blue, there is nothing you can do. Keep Right On

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Vespa
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Re: Bowel cancer any tips?

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Zambo wrote: Fri Sep 15, 2023 12:18 pm
Vespa wrote: Fri Sep 15, 2023 9:02 am Got a call from my consultant last night. They are going to try to put me on a clinical trial. He's written to the pharma company to get permission. Means I have to move from private back to NHS because all trials are done on the NHS so I need to phone AXA today. Be interesting to see how it goes - if anyhwere.
I've got everything crossed for you Vespa. You have been a beacon of light and an inspiration the way you have handled your health issues, and trust that this new direction will be a beacon of hope for you.
Thanks man, if it works out I'll be happy.

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lambrini
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Re: Bowel cancer any tips?

Post by lambrini »

Zambo wrote: Fri Sep 15, 2023 12:18 pm
Vespa wrote: Fri Sep 15, 2023 9:02 am Got a call from my consultant last night. They are going to try to put me on a clinical trial. He's written to the pharma company to get permission. Means I have to move from private back to NHS because all trials are done on the NHS so I need to phone AXA today. Be interesting to see how it goes - if anyhwere.
I've got everything crossed for you Vespa. You have been a beacon of light and an inspiration the way you have handled your health issues, and trust that this new direction will be a beacon of hope for you.
+1
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Vespa
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Re: Bowel cancer any tips?

Post by Vespa »

lambrini wrote: Fri Sep 15, 2023 6:15 pm
Zambo wrote: Fri Sep 15, 2023 12:18 pm
Vespa wrote: Fri Sep 15, 2023 9:02 am Got a call from my consultant last night. They are going to try to put me on a clinical trial. He's written to the pharma company to get permission. Means I have to move from private back to NHS because all trials are done on the NHS so I need to phone AXA today. Be interesting to see how it goes - if anyhwere.
I've got everything crossed for you Vespa. You have been a beacon of light and an inspiration the way you have handled your health issues, and trust that this new direction will be a beacon of hope for you.
+1
Thanks lambrini.

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lambrini
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Re: Bowel cancer any tips?

Post by lambrini »

Vespa wrote: Fri Sep 15, 2023 6:28 pm
lambrini wrote: Fri Sep 15, 2023 6:15 pm
Zambo wrote: Fri Sep 15, 2023 12:18 pm
Vespa wrote: Fri Sep 15, 2023 9:02 am Got a call from my consultant last night. They are going to try to put me on a clinical trial. He's written to the pharma company to get permission. Means I have to move from private back to NHS because all trials are done on the NHS so I need to phone AXA today. Be interesting to see how it goes - if anyhwere.
I've got everything crossed for you Vespa. You have been a beacon of light and an inspiration the way you have handled your health issues, and trust that this new direction will be a beacon of hope for you.
+1
Thanks lambrini.
You deserve it, Vespa..❤️
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